Text by Maxfield Sparrow
Text by Maxfield Sparrow
Autism is a neurological difference that affects every sphere of an individual's life: learning, communication, relationships, career aspirations, and ultimately, independence.
In 2018, the Centers for Disease Control and Prevention published a study that found the prevalence of autism was one in 59 eight-year-olds.
As those children grow older, questions around independence get even more complicated.
National Geographic asked five autistic artists, "What does independence mean to you?"
Tap to hear from a photographer, an animator, a painter, a poet, and a filmmaker.
This story is best experienced with sound on.
There are things that keep me stable, and when I’m stable I can be myself ... So, I consider independence to be stuff that makes me independent from insanity.
Photographs and Voice-over By Anie Knipping
There are things that keep me stable, and when I’m stable I can be myself ... So, I consider independence to be stuff that makes me independent from insanity.
Photographs and Voice-over By Anie Knipping
Being able to be in control of my clothes is absolutely essential, because if I’m wearing anything that bothers me at all, it just takes over my whole ability to think.
Being able to be in control of my clothes is absolutely essential, because if I’m wearing anything that bothers me at all, it just takes over my whole ability to think.
There’s a lot of people that have issues about taking pills, but for me I would not be alive without them.
There’s a lot of people that have issues about taking pills, but for me I would not be alive without them.
Having the space that I sleep in be dim light, and all the colors and plants and stuff to calm my senses down is really crucial to being able to put myself back together.
Having the space that I sleep in be dim light, and all the colors and plants and stuff to calm my senses down is really crucial to being able to put myself back together.
Anie Knipping
Photographer
Anie Knipping
Photographer
Artist Statement
Anie Knipping is a 38-year-old artist who works in a variety of mediums, including painting, drawing, sewing, writing, and photography—her favorite.
“I’ve made great strides in my stability,” Anie says, but she knows she won’t ever live alone or hold a job. As depicted in her photo essay, she achieves independence by gaining control over her environment. Sensory accommodations, medication, and the companionship of her partner, she says, are crucial to her emotional well-being.
Anie lives in New Jersey. In 2012, she self-published Eccentricity: A Journey Through a Mind, an illustrated account of her experiences. She also speaks at conferences, she says, “because I love people.”
Animation by Stephen Storti
Stephen Storti
Animator
Stephen Storti
Animator
Artist Statement
For the last 12 years, Stephen Storti has made comic books, cartoon shorts, and animated shows, such as “Ethan, Nathan, Larry, and Elmer.” His short films “The Rope” and “The Kiss” have screened at numerous film festivals. He intends to make a living at it and says, “Someday, I will.”
Stephen, 28, graduated from Exceptional Minds, a professional training academy for animators and visual effects artists with autism. He often works on projects at the Exceptional Minds Animation Studio, including animations for Sesame Street.
Stephen lives in Los Angeles with his mom, dad, and brother, and has a sister and three nieces. He also enjoys creating cartoons with two childhood friends.
Painting and Voice-over by Chelsea Dub
The root system of the (dying) vine entrapping the brain is a visual depiction of the neuroableist construct that restricts the mindsets and capabilities of neurodivergent—including autistic—people.
The root system of the (dying) vine entrapping the brain is a visual depiction of the neuroableist construct that restricts the mindsets and capabilities of neurodivergent—including autistic—people.
The heart signifies passion and compassion—living in accordance to your values, no matter what is thrown at you. It also symbolizes resilience to the harshness of the world.
The heart signifies passion and compassion—living in accordance to your values, no matter what is thrown at you. It also symbolizes resilience to the harshness of the world.
The butterfly is a symbol of hope and transformation, allowing oneself to envision a better life and to evolve as a person ... [It] can also represent any benefactor of understanding and generosity, or society as a whole benefiting as a result of personal growth.
The butterfly is a symbol of hope and transformation, allowing oneself to envision a better life and to evolve as a person ... [It] can also represent any benefactor of understanding and generosity, or society as a whole benefiting as a result of personal growth.
Chelsea Dub
Painter
Chelsea Dub
Painter
Artist Statement
As soon as she could hold a crayon, Chelsea Dub began expressing herself through art. The 29-year-old multimedia artist now works in such mediums as sculpture, painting, drawing, printmaking, digital photography, and computer graphics.
Art has served as an outlet to interpret and cope with her experiences and feelings in a creative way. Common themes include the connection between issues such as disability rights, feminism, and animal rights.
Chelsea lives with her parents, two siblings, and two cats in Noblesville, Indiana. She graduated from Ball State University in 2017 with a BFA in painting and animation. She hopes to earn a living with her art, but finding jobs that accommodate neurodivergent employees is difficult.
Stamp sticks to an envelope
And autism sticks to me
That envelope has an address
Where it is supposed to be,
I, on the other hand
Ponder my destiny ...
Poem by Tito Rajarshi Mukhopadhyay
Reading by Nathan Everett Patterson
No doubt autism has its shames
Social and sensory challenges
Should I woe my days
And layer my days with sorrow?
Sorrow can be a choice
An optional stamp to stick
Burden my footsteps down
With its heavy grip.
So I hyper-visualize:
A speck of dust on ground,
See how it wars with wind
Shifts an inch further down,
I battle with my senses
I twirl my way, lag behind,
Then I tell a story to the mirror:
“Once upon a time....
There was a speck of dust
How it twirled with wind ....”
Everyone seeks something
Pursue dreams deep and high,
People love to soar,
Wherever they wish to fly,
I once told a story
To a speck of sand
Of an image behind a mirror
Whose mind I never understand.
And I once told the story
To the mirror about the sand ...”
So the question of independence
Maybe a life long staggering trip
If life is fluid, while others flow
I’m happy to drip, drip, drip.
Mind of a story teller,
With a story as fluid as air,
I am as free as the depth of space
I find my Freedom there.
Tito Rajarshi Mukhopadhyay
Poet
Tito Rajarshi Mukhopadhyay
Poet
Artist Statement
Tito Rajarshi Mukhopadhyay is a 31-year-old writer and poet. He has published several books of poetry offering insights into his perspective as a non-speaking autistic person, including The Mind Tree, which he wrote between the ages of eight and 11, and How Can I Talk If My Lips Don't Move? He practices writing every day as a discipline and experiments with new styles.
In his book Plankton Dreams—What I Learned in Special Ed, Tito describes his experiences and frustrations with schooling. He continues to study literature and philosophy, but says life offers endless opportunities to learn. “That insufficiency in the heart is school, that moment of rejection is also a school,” he explains.
Tito lives with his mother in Austin, Texas. Financial freedom is important to him, but he’s realistic about what he can and can’t do. “I do not think about the future beyond the moment,” he says. “We are flimsy boats in the sea of time.”
Poem read by Nathan Everett Patterson
Nathan is an Irish actor, singer, and writer, with a focus on musical theater. On the spectrum himself, Nathan is passionate about representing disability onstage and showing the world that disabled actors are talented and employable.
Film by Forrest Lotterhos
Forrest Lotterhos
Filmmaker
Forrest Lotterhos
Filmmaker
Artist Statement
Forrest Lotterhos started playing music and writing at a young age and began creating films in 2013 as a way to push the boundaries of storytelling and sound design. His film, phoria, has been in gallery exhibitions and screened at over 15 international film festivals.
Creative expression allows Forrest, 32, to connect with the world in ways that feel safe and affirming, as well as to explore movement and sound as alternative forms of communication. Through his art, he aims to advocate for autistic, LGBTQ, and other individuals who feel marginalized.
Forrest graduated from the University of Colorado in 2015 with a BA in creative writing and a BFA in film studies production. He is a freelance video editor, performing musician and composer and started his own media company in 2016 with the goal of being a full-time artist. He lives and works in Lafayette, Colorado.
These expressions not only provide a window into autism and how autistic individuals view the world, but offer insights into the nature of independence itself.
Though some of these artists convey a longing for conventional sources of meaning and autonomy, they also show the validity of less traditional definitions.
Our interconnectedness makes independence a spectrum. There are as many ways to live independently as there are people.
Maxfield Sparrow is an autistic advocate, writer, and speaker. They are the author of The ABCs of Autism Acceptance and editor of the forthcoming anthology Spectrums: Autistic Transgender People in Their Own Words, scheduled to be published in September 2020.
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